The questionnaire included 10 questions, all of which had YES/NO answers. However, some people answered with a sentence, rather than just a YES or a NO. Where that happened, the project looked at what had been written and worked out, as far as possible, whether the answer should be counted as a YES or a NO.

For each question, we have counted up how many answers were YES, and how many answers were NO.

Mainly Yes = More than 75% of answers were YES

More Yes than No = Between 60-75% of answers were YES

Mainly No = More than 75% of answers were NO

More No then Yes = Between 60-75% of answers were NO

Some Yes and some No = There were about the same number of YES and NO answers

 

How much people said they knew about their information and how it is used and looked after.Adults of working ageOlder peopleCarersJourney Enterprises
1. Do you know what types of personal information are held by your care provider about you/your relative?Mainly yesMore no than yesMore yes than noMainly yes
2. Do you know how to find out what types of information the care provider holds about you/your relative?More no than yesMore no than yesMore yes than noMainly yes
4. Do you know who your information may be shared with?Mainly yesMainly noSome yes and some noMore yes than no
7. Do you know how to check that the information they have is safe?More no than yesMainly noMainly noSome yes and some no
10. Do you know to whom you should report any concerns you may have about cyber security? (*)Some yes and some noMainly noMore no than yesMore yes than no

Summary: Older people generally said they did not know about their information or how it is used and looked after by their care service. Younger adults and carers knew a bit more. The people who said they know most were those supported by Journey Enterprises.

*The full text of question 10 was “Do you know to whom you should report any concerns you may have about cyber security (i.e. the safety of your personal information held by your care provider)?”

 

Whether people had been told about what their information is used for and how it is looked after.Adults of working ageOlder peopleCarersJourney Enterprises
3. Have they told you what they use that information for?More no than yesMainly noMainly noMore yes than no
5. Have they told you what they do to keep your information safe?Some yes and some noMainly noMainly noMore yes than no

Summary: Older people and carers mainly said that they had not been told what their care service uses their information for, or how they look after it. Some younger adults said they had been told this. The people who most often said they had been told this were those supported by Journey Enterprises.

 

People’s feelings and opinionsAdults of working ageOlder peopleCarersJourney Enterprises
6. Is this something you have ever thought, or worried, about before reading this questionnaire?More no than yesMainly noMainly noSome yes and some no
6a. Would information safety influence your choice of care provider in the future?Mainly yesMore yes than noMore yes than noDid not include this item
9. Do you feel in control of your information?More no than yesMainly noMainly noMore yes than no
8. Would you like help or guidance about to how to check that the information they have is safe?Mainly yesMainly noMore yes than noMainly yes

Summary: Most people, particularly older people and carers, said that this was not something that they had ever thought about or worried about before. However, most people said that it was now something that would influence their choice of care provider in future and, apart from older people, most people said that they would like guidance about how to check that their information is safe. Apart from people supported by Journey Enterprises, most people said that they did not currently feel in control of their information.